Congenital heart disease and pregnancy: Women's experience of MPT care
Research type
Research Study
Full title
Living through pregnancy, childbirth and the early weeks of motherhood with congenital heart disease: Women’s experiences of maternity care provided by multi-professional teams (MPT). An Interpretive Phenomenological Analysis
IRAS ID
296328
Contact name
Clare Boag
Contact email
Sponsor organisation
Northumbria University
Clinicaltrials.gov Identifier
29110, Northumbria University Ethics approval number
Duration of Study in the UK
3 years, 2 months, 30 days
Research summary
The aim of this study is to enable women with congenital heart disease to share their experience of being cared for by teams made up of several health care professionals. The study gives women an opportunity to explore their own lived experience throughout pregnancy, birth and the postnatal period bringing to light the insights of women in relation to their care. It is hoped that his information will inform the organisation and development of professional teams in future.
Women will be invited to take part in the study if:
They are currently pregnant and between 12 weeks and 20 weeks’ gestation.
They have congenital heart disease (diagnosed prior to pregnancy) and they understand that their maternity care will be delivered by a team of professionals (multi-professional team). Woman must be over the age of 16 years and speak English in order to participate.Women who wish to take part will be asked to participate in three separate interviews (an interview is an opportunity for women to talk about their experiences) with the researcher, each lasting for approximately one hour. The interview time points are as follows:
Interview One: between 12 and 20 weeks of pregnancy - following the booking appointment with community midwife and the booking appointment with an obstetrician (i.e., two separate appointments).
Interview Two: between 32 and 36 weeks of pregnancy.
Interview Three: 8 to 12 weeks after the birth of the baby.Taking part in the research will give women an opportunity to share their experiences of being cared for by a multi-professional team. Taking part in the study will not benefit participants directly, however, the study findings could benefit other women living through pregnancy with congenital cardiac disease in the future. Knowledge generated from the study will be shared with women who participate in the research, other pregnant women and healthcare professionals.
REC name
East of England - Cambridge South Research Ethics Committee
REC reference
21/EE/0232
Date of REC Opinion
2 Dec 2021
REC opinion
Further Information Favourable Opinion