Comprehensive modelling of outcomes for those with memory problems 1.
Research type
Research Study
Full title
Comprehensive modelling of outcomes for those with memory problems - Focus groups for feedback on MODEM findings(ESRC-LSE-Southampton)
IRAS ID
177714
Contact name
Ann Bowling
Contact email
Sponsor organisation
London School of Economics and Political Science
Clinicaltrials.gov Identifier
15/IEC08/0005, IRAS Social Care REC approval for MODEM survey arm led by Prof S Bannerjee, Sussex
Duration of Study in the UK
1 years, 11 months, 30 days
Research summary
The wider LSE MODEM programme aims to develop a comprehensive, integrative, quantitative set of models to estimate current and future needs, and the costs of current and alternative interventions at meeting them. It will cover impacts of dementia on cognition, functioning and behaviour, responses from unpaid carers, responses from health and social care systems, the effectiveness and cost impacts of these interventions, and the potential long-term funding implications.
This application covers one arm of the study - focus groups for user feedback and interpretation of quantitative findings.
In order to ensure relevance, and to include users’ interpretations of quantitative survey data and modelling, as well as to capture their experiences, we are including focus group methods in order to provide user feedback and interpretation of quantitative analyses and modelling and on experiences of accessing and using services.
We propose to set up four focus groups of eight people at each with mild memory problems, and four separate groups of eight carers at each (held at same venues, at the same times), at key points within the project.
Participants will be volunteers from existing support, activity or interest groups for carers of people with dementia, and/or for people with mild memory problems, recruited with Margaret Dangoor and voluntary sector contacts; those carers who consent will be asked if we could also invite the person with dementia they care for, if their memory problem is judged to be mild and they are able to provide informed consent. We need to be pragmatic in our approach in the event of insufficient numbers and recruit unmatched pairs where group leaders assess the person with memory problems to have no more than mild problems.REC name
Social Care REC
REC reference
15/IEC08/0029
Date of REC Opinion
23 Jun 2015
REC opinion
Further Information Favourable Opinion