Co-producing a supported self-management intervention for aphasia
Research type
Research Study
Full title
Developing a supported self-management intervention for stroke survivors with aphasia: A co-production study
IRAS ID
266146
Contact name
Faye Wray
Contact email
Sponsor organisation
University of Leeds
Duration of Study in the UK
0 years, 8 months, 30 days
Research summary
Aphasia is a condition which may affect stroke survivors’ ability to speak, understand speech, read or write. Aphasia often has a substantial impact on daily life, making it difficult for stroke survivors and their families to manage.
Support programmes known as ‘self-management' interventions have been developed to help stroke survivors to develop confidence and strategies to manage life after stroke. However, further research is needed to develop a suitable self-management intervention for stroke survivors with aphasia (SSWA) and their families. During an earlier study we began to design a supported self-management intervention specifically for SSWA and their families but further development work is needed.
During this study we will work together with SSWA, their family members and speech and language therapists to refine the intervention, making sure it is accessible and usable in practice. We will use a method known as 'co-production', where a group of people work together in a structured and facilitated way. This work will take place during a series of six, two hour long meetings, over a six month period. Group members will be presented with work from the previous related study in an accessible way. Group members will discuss ideas for the content of the intervention ('what we want to happen') and plan implementation ('how we will deliver this'). This will include developing accessible written materials to accompany the intervention and an assessment of training needs for intervention facilitators. Some reading materials may be sent to group members in advance of each meeting. Additional time to read and process materials may be preferred by some SSWA. However, this preparatory work will not be compulsory and will be undertaken on a voluntary basis.
Future research will test the intervention in feasibility study before the potential benefits of the intervention are evaluated in a larger trial.
REC name
North West - Preston Research Ethics Committee
REC reference
19/NW/0531
Date of REC Opinion
27 Aug 2019
REC opinion
Further Information Favourable Opinion