Co-designing Community-Based Diabetes Services for CYP
Research type
Research Study
Full title
Co-designing Community Based Diabetes Services Responsive to the Needs of Children and Young People
IRAS ID
179878
Contact name
Angela Harden
Contact email
Sponsor organisation
University of East London
Duration of Study in the UK
1 years, 2 months, 0 days
Research summary
This is a 14 month qualitative study examining the co-design process of community-based diabetes services for children and young people from the perceptions of diabetics aged 10-25 living in the North and East of London. Diabetes control in UK children and young people is poor compared with other EU countries, especially in more deprived and hard to reach families. Across the UCLPartners region (e.g. north east and north central London, south and west Hertfordshire, south Bedfordshire and south west and mid Essex) only 13% of children with diabetes have HbA1c levels under 7.5% – compared with 34% of German children. Poor HbA1c control translates into significantly increased risk of complications. The planned move to community-based care for diabetes in the region provides a unique opportunity to make services more responsive to patients’ needs, especially where empowerment and engagement is low, and to improve outcomes. This project will systematically assess the views and experiences of “marginalised” children and young people with diabetes, and will feed these data back to service providers and commissioners. Children and young people from all available ethnic backgrounds will be invited to take part in the study, and we will particularly target children and young people from African and South Asian backgrounds, because these groups have been shown to have poorer diabetes control despite similar deprivation levels than comparative ethnic groups. The results of this project is intended to benefit young diabetes patients by ensuring that new and emerging community-based services better reflects their needs and changing lifestyles.
REC name
London - Surrey Research Ethics Committee
REC reference
15/LO/0903
Date of REC Opinion
27 Jul 2015
REC opinion
Further Information Favourable Opinion