Co-designed tech to help with invisible condition management

• Research type

  Research Study

• Full title

  Co-designed technology: supporting the invisible aspects of paediatric long-term condition management

• IRAS ID

  347529

• Contact name

  Ursula Ellen Ankeny

• Contact email

  u.ankeny@shu.ac.uk

• Sponsor organisation

  Sheffield Hallam University

• Duration of Study in the UK

  0 years, 11 months, 31 days

• Research summary

  The overall PhD study is focused on exploring how co-designed technologies can be used to explore and support the invisible aspects of paediatric long-term condition management. I am investigating this topic through two case studies, one focused on Juvenile Idiopathic Arthritis (JIA) and the other Cerebral Palsy (CP). My approach will use co-design to explore individual’s lived experiences, to enable context mapping, collective sense-making and the making of objects and technologies. The overall body of work aims to contribute to co-design methodology, develop an in-depth understanding of integrated condition management and improve long-term paediatric care in JIA and CP.

  This application is seeking ethics for the co-design sessions with participants to be undertaken during this PhD to investigate paediatric condition management. Co-design is used to refer to "the creativity of designers and people not trained in design working together in the design development process" (Sanders & Stappers, 2008). Co-design uses the making of artefacts to translate theories, ideas and knowledge into physical objects, leading to richer data and more successful, engaging outcomes with a greater impact. This approach will ensure the stakeholders are actively involved and that their knowledge and insights directly shape the artefacts produced.

  The enquiry is split into two case studies, one with JIA population and one with CP population but the approach for both will be the same. Mixed methods will be used based on the PhD candidates previous extensive experience in creating, facilitating, and analysing creative activities. They are:
  - Online surveys
  - Shadowing of healthcare professionals to build a clear understanding of the condition landscapes
  - Semi- structured interviews/ co-design sessions with Children and Young People (CYP), their parents/ carers, healthcare and educational professionals
  - Activity packs sent via post
  - Semi-structured group co-design workshops with CYP, their parents/carers, healthcare and educational professionals

• REC name

  South West - Cornwall & Plymouth Research Ethics Committee

• REC reference

  24/SW/0115

• Date of REC Opinion

  7 Nov 2024

• REC opinion

  Further Information Favourable Opinion