Co-design palliative care service model, people with mental illness.
Research type
Research Study
Full title
Co-design of an evidenced informed service model of integrated palliative care for persons living with a severe mental illness
IRAS ID
307529
Contact name
Joanne Reid
Contact email
Sponsor organisation
Queens University Belfast
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
2 years, 4 months, 29 days
Research summary
Adults with a severe mental illness (SMI) experience higher rates of physical ill health and have a life expectancy 10-20 years lower than that of the general population. Persons living with a SMI represent a vulnerable, under- served and under-treated population who have been overlooked in health inequalities, such as palliative care.
The aim of this study is to explore and develop new ways of improving access to palliative care for people with SMI, using a collaborative approach to inform a service of care with 6 phases and will be conducted over 2 Healthcare Trust sites (Northern and Belfast) the study will be for a period of 3 years.
Patients, beraeved caregivers, service providers, policy makers and researchers will come together to find a solution to the problem.
There will be an establishment of an expert reference group (ERG); consisting of persons with SMI, bereaved caregivers, service providers, policy makers and researchers, meeting 3 times per year to explore, discuss and collaboratively plan new ways to provide palliative care for people with SMI.The PhD researcher will review of all the current research in this area, focusing on the provision of palliative care of people with SMI.
Interviews with people with SMI in receipt of palliative care and bereaved caregivers of people with SMI.
Focus groups with healthcare professionals involved in the care of people with SMI from mental health and palliative care and their experiences.
Development of an integrated model of palliative care. The PhD researcher will consult with the ERG to review findings from all of the above to aid the development of this service model of care to inform clinical practice, education, policy, further research and service improvement to provide guidance and feedback to inform and support the development of these recommendations to address health inequalities for people with SMI.
REC name
HSC REC A
REC reference
22/NI/0078
Date of REC Opinion
7 Jun 2022
REC opinion
Further Information Favourable Opinion