CMT-TREAT-NMD-ID

• Research type

  Research Database

• IRAS ID

  220231

• Contact name

  Mary Reilly

• Contact email

  m.reilly@ucl.ac.uk

• Research summary

  Charcot Marie Tooth disease (CMT) Translational Research in Europe for the Assessment and Treatment of Neuromuscular Diseases (TREAT-NMD)International Database (ID)

• REC name

  London - Surrey Borders Research Ethics Committee

• REC reference

  18/LO/1226

• Date of REC Opinion

  12 Sep 2018

• REC opinion

  Further Information Favourable Opinion

• Data collection arrangements

  The purpose of this research database is to collect information about patients with Charcot-Marie-Tooth disease (CMT) or Hereditary Neuropathies. This information will be used to answer research questions, to support the planning of potential new clinical trials in CMT disease in the future and to identify potential participants who may be eligible for these trials.

• Research database title

  Charcot Marie Tooth disease (CMT) Translational Research in Europe for the Assessment and Treatment of Neuromuscular Diseases (TREAT-NMD)International Database (ID)

• Establishment organisation

  University of South Florida Health Informatics Institute (USF HII)

• Establishment organisation address

  Data Management and Coordinating Centre (DMCC)

  3650 Spectrum Blvd, Suite 100

  Tampa, Florida

  FL 33612