Clinical Records Management System for inflammatory arthritis

  • Research type

    Research Database

  • IRAS ID

    207472

  • Contact name

    Costantino Pitzalis

  • Contact email

    c.pitzalis@qmul.ac.uk

  • Research summary

    Clinical Records Management System for inflammatory arthritis

  • REC name

    East of England - Cambridge East Research Ethics Committee

  • REC reference

    17/EE/0119

  • Date of REC Opinion

    5 May 2017

  • REC opinion

    Further Information Favourable Opinion

  • Data collection arrangements

    Currently upwards of 400 patients suffering from inflammatory arthritis (predominantly Rheumatoid and psoriatic arthritis) have been recruited to primarily to synovial biopsy based studies led by the centre for Experimental Medicine and Rheumatology at Barts Health NHS Trust. Patients within the cohort have been recruited at varying disease stages including at disease onset (PEAC, Pathobiology of Early Arthritis cohort), following failure to respond to traditional disease modifying anti-rheumatic drugs (DMARDs) (THERAPIST, STRAP) and following the failure on first line biologic therapy (R4RA study).

    The CRMSIA database proposed intends to act as a central repository for all clinical data collected within clinical trials within the department of Rheumatology, Barts Health NHS Trust led by Experimental Medicine and Rheumatology for which QMUL is the study sponsor. The intention would be to continue to follow these patients on their return to routine NHS rheumatology clinic, collecting data recorded within routine follow up visits.

  • Research programme

    CRMSIA offers a unique opportunity to collect an integrated pathophysiological/clinical longitudinal dataset of a unique cohort of patients offering the opportunity to evaluate the progression, modulation and development of synovial pathobiology in line with disease progression and response/non response to treatment.

  • Research database title

    Clinical Records Management System for inflammatory arthritis

  • Establishment organisation

    Centre for Experimental Medicine & Rheumatology, Queen Mary University London

  • Establishment organisation address

    2nd Floor John Vane Science Centre, William Harvey Research Institute

    Barts and the London School of Medicine

    Queen Mary University London

    EC1M 6BQ