CHOIR Registry

• Research type

  Research Study

• Full title

  CHronic nonbacterial Osteomyelitis International Registry (CHOIR)

• IRAS ID

  255843

• Contact name

  Christian Hedrich

• Contact email

  Christian.Hedrich@liverpool.ac.uk

• Sponsor organisation

  Alder Hey Children's Hospital NHS trust

• Duration of Study in the UK

  5 years, 0 months, 1 days

• Research summary

  Chronic nonbacterial osteomyelitis (CNO) is an autoinflammatory bone disease that mainly affects children and adolescents. Clinical presentations range from mild and sometimes limited unifocal disease to severe, chronically active or recurrent inflammation of multiple bones. The objective of the study is to establish a prospective disease registry for chronic recurrent multifocal osteomyelitis (CRMO)/chronic nonbacterial osteomyelitis (CNO) in order to investigate the natural history of the disease and the responses of patients to different clinical managements over 5 years.

• REC name

  East of England - Cambridge South Research Ethics Committee

• REC reference

  19/EE/0111

• Date of REC Opinion

  29 Aug 2019

• REC opinion

  Further Information Favourable Opinion