Children’s Views on the Usability of SISOM Version 2
Research type
Research Study
Full title
SISOM STUDY 1: CHILDREN’S VIEWS ON THE GRAPHICAL REPRESENTATIONS, LANGUAGE AND USABILITY OF SISOM
IRAS ID
193266
Contact name
Faith Gibson
Contact email
Sponsor organisation
Great Ormond Street Hospital for Children NHS Foundation Trust
Duration of Study in the UK
0 years, 8 months, 30 days
Research summary
Children with cancer experience complex physical, psychosocial and behavioural symptoms. There are large variations in how children experience these symptoms and problems and the level of distress they cause, making it difficult for professionals to anticipate what children are likely to experience and thus to know how best to care for them. Children may additionally be reluctant to report their symptoms, as they do not want to worry their parents. Thus children’s symptoms and problems are often under-reported. SiSom was developed by a team at the Centre for Shared Decision Making and Collaborative Care Research at the University of Oslo. SiSom is a multiplatform application which can be installed on a computer or tablet. This interactive communication intervention supports ill children to convey physical, functional and psychosocial symptoms and problems. This ‘tool’ gives children a ‘voice’, helping them to report concerns and enabling health care providers to better understand issues and respond with timely and appropriate care. SiSom is available for children with cancer in Norwegian, Swedish, British English, American English, Spanish and Greek.
In this study we will linguistically validate the new British English version of SiSom in five phases repeating methodology utilised in earlier studies. Phases 1-3a were approved by the Ethics Committee of London South Bank University as they recruited healthy children/children with cancer via a charity. We would now like to seek ethical approval for Phases 3a (due to prior poor recruitment), 3b and 4 of the study which involve children with cancer. In these phases we will: assess children’s understanding of the symptom terms (Phase 3a) and the animations (Phase 3b), ask children to use SiSom while 'thinking aloud' and tell us what they liked and didn't like about SiSom (Phase 4). We will also interview parents about their views on their child's use of SiSom.
REC name
London - City & East Research Ethics Committee
REC reference
16/LO/2072
Date of REC Opinion
26 Jan 2017
REC opinion
Further Information Favourable Opinion