Children’s experiences of Type 1 diabetes: a qualitative investigation
Research type
Research Study
Full title
The views, experiences and support needs of children with Type 1 diabetes: a qualitative investigation
IRAS ID
203933
Contact name
David Rankin
Contact email
Sponsor organisation
University of Edinburgh
Duration of Study in the UK
1 years, 2 months, 31 days
Research summary
Type 1 diabetes (T1D) is one of the most prevalent chronic diseases diagnosed in childhood and its incidence in Scotland is increasing. Many children aged ≤12years with T1D experience poor blood glucose control and only a minority achieve clinically recommended targets. Maintaining good blood glucose control during childhood can significantly reduce the likelihood of complications developing in adulthood.
While parental involvement and supervision remain critical throughout childhood, children are encouraged to gradually take on aspects of diabetes management in partnership with their parents. Children aged 9-12yrs are considered to be at an important stage between young childhood when they depend on their parents for virtually all of their diabetes care, and teenage years when they become increasingly independent. Children in the 9-12yr age range have often begun to take on some responsibilities for their diabetes management and differ significantly from younger children where parents continue to provide virtually all of their diabetes care.
There has been growing international recognition of the importance of listening to and consulting with children, especially concerning their healthcare (UN Convention of the Rights of the Child and National Services Framework, 2004). However, little attention has been given to 9-12 year old children's experiences of living with T1D, their views on their involvement in their own care and need for support.
Using in-depth interviews and participatory activities with approximately n=25 children, this qualitative study will: (1) Explore children’s experiences of living with and managing Type 1 diabetes; (2) Identify the factors and considerations which influence and inform their adherence to treatment advice; and, (3) Determine ways in which children can be better supported to help manage their treatment and care effectively. It is anticipated that such insight will form the basis for developing better support interventions for children with T1D.REC name
South East Scotland REC 01
REC reference
16/SS/0084
Date of REC Opinion
16 May 2016
REC opinion
Further Information Favourable Opinion