Children with SVCHD; considering the parent experience
Research type
Research Study
Full title
Children with Single Ventricle Congenital Heart Defects; considering the parent experience
IRAS ID
212134
Contact name
Midori Lumsden
Contact email
Sponsor organisation
University of Manchester
Duration of Study in the UK
1 years, 6 months, 1 days
Research summary
Families of children with Congenital Heart Defects (CHD) are at risk of psychological and social distress. Previous studies have looked at what personal traits, such as personality, and social factors like wider family, and stress, could affect how they cope.
This study will listen to parents’ stories of having a child with CHD. It will see how parents felt when their child was in hospital and what they might have found difficult. It will find out how services supported children and their families from the point of receiving the diagnosis, throughout surgery and during after care.
We will speak to up to ten mothers and/or fathers whose child has had all their surgeries at a local hospital. Both parents may take part if they wish, and would have separate interviews. However if they want a partner present for support this would be fine. Interviews will take place at a location convenient to the parent, such as their home, local GP surgery or hospital. They will last around 1-2 hours, depending on how much the parent wants to say.
We will be asking them to tell their story. The interviews will make sure parents can give as much information as they want. They will be recorded then typed up. The researcher will then look at the answers and see if there are similar things that the parents said.
The results will be shared with the team at the hospital so they know what they are doing well and if there is anything they could change to make things better.
REC name
North West - Greater Manchester Central Research Ethics Committee
REC reference
17/NW/0165
Date of REC Opinion
7 Apr 2017
REC opinion
Further Information Favourable Opinion