Childhood onset cardiomyopathies: developing risk stratification tools
Research type
Research Study
Full title
Childhood hypertrophic cardiomyopathy - developing a novel risk stratification tool
IRAS ID
182354
Contact name
Juan Pablo Kaski
Contact email
Sponsor organisation
Institute of Child Health (UCL)
Duration of Study in the UK
3 years, 0 months, 1 days
Research summary
Unexplained thickening of the heart muscle (hypertrophic cardiomyopathy or HCM) is a recognised cause of sudden cardiac death (SCD) in children. This risk can be reduced with treatment. The risk factors for SCD in adult patients are well established and high risk patients can be identified by doctors allowing treatment. In comparison, during childhood the risk factors for SCD have not been established and therefore doctors cannot reliably identify patients at high risk. This study will identify risk factors for SCD in childhood HCM and develop a tool to identify those at risk allowing treatment to be individualised for patients.
REC name
West Midlands - Coventry & Warwickshire Research Ethics Committee
REC reference
16/WM/0207
Date of REC Opinion
21 Apr 2016
REC opinion
Favourable Opinion