Characterization of the Plasma Biomarker (24HC) in children with DEE

  • Research type

    Research Study

  • Full title

    Multi-Center Characterization of the Plasma Biomarker, 24s-hydroxycholesterol (24HC) in children with Development and/or Epileptic Encephalopathies

  • IRAS ID

    253422

  • Contact name

    Helen Cross

  • Contact email

    h.cross@ucl.ac.uk

  • Sponsor organisation

    Ovid Therapeutics

  • Duration of Study in the UK

    1 years, 0 months, 13 days

  • Research summary

    This is a study in 50 male or female children aged between 2 and 12 years with a documented history of Developmental and Epileptic Encephalopathies (DEE). The study will be performed in the US and in the UK. An enzyme called CH24H, converts cholesterol in the brain to 24HC. Research shows that levels of 24HC decrease with age and lower levels of 24HC are reported in neurodegenerative disorders. Research is needed to determined how lower levels of 24HC are related to epilepsy disorders.
    In this study a blood sample will be drawn from each subject to measure cholesterol levels and those levels will be compared to the seizure frequency in the
    children diagnosed with DEE.

  • REC name

    London - Central Research Ethics Committee

  • REC reference

    18/LO/2190

  • Date of REC Opinion

    15 Jan 2019

  • REC opinion

    Further Information Favourable Opinion