CF Skype study - Feasibility
Research type
Research Study
Full title
“Is the management of Cystic Fibrosis improved by the use of online video calling to engage patients? A feasibility study using exercise as a model”
IRAS ID
205341
Contact name
J Trott
Contact email
Sponsor organisation
Royal Devon and Exeter NHS FoundationTrust
Duration of Study in the UK
1 years, 0 months, 4 days
Research summary
Cystic Fibrosis (CF) is a serious, life-limiting inherited disease which primarily affects the lungs and gut. This means that sufferers are required to do a large amount of time consuming and often complex treatments each day. Managing CF requires patients to attend a specialist centre to receive treatments and get support, this is particularly difficult for patients attending the Royal Devon & Exeter Hospital (RD&E) as they often live far away and are required to travel which can be time consuming and expensive. The feasibility study will answer the research question “Is the management of Cystic Fibrosis improved by the use of online video calling to engage patients? A feasibility study using exercise as a model.” The information provided from this study will inform a larger study to determine the clinical significance and cost-effectiveness of enhancing engagement in various CF treatments facilitated via video calling.
We will ask nine participants to take part in an individualised exercise programme using video calling for 8-weeks. During the eight weeks, patients will be asked to participate in supervised exercise sessions using video calling and unsupervised exercise recorded using a diary or accelerometer. During this time we are interested in how patients engage with the CF team and what they think of the procedures and the intervention.REC name
South West - Cornwall & Plymouth Research Ethics Committee
REC reference
16/SW/0175
Date of REC Opinion
23 Aug 2016
REC opinion
Further Information Favourable Opinion