CASTLE study V1
Research type
Research Study
Full title
The development and validation of paediatric bronchiectasis quality of life questionnaires.
IRAS ID
362231
Contact name
Priti Kenia
Contact email
Sponsor organisation
Birmingham Women's and Children's Hospitals NHS Foundation Trust
Duration of Study in the UK
2 years, 0 months, 0 days
Research summary
We aim to develop and validate a questionnaire that measures the quality of life of children and young people with bronchiectasis, as well as their parents or caregivers. Bronchiectasis is a long-term lung condition that causes repeated coughing and chest infections and can impact a persons daily living.
Currently, there is no quality of life tool specifically designed for children with this condition. This gap makes it harder for healthcare teams to fully understand and respond to the needs of young patients and their families. As a result, care for this condition can be unequal and inconsistent.
By creating and testing a new, disease-specific questionnaire, this project will help improve both clinical care and research by providing a better way to measure how bronchiectasis affects children’s lives.
REC name
London - Surrey Research Ethics Committee
REC reference
25/PR/1491
Date of REC Opinion
14 Nov 2025
REC opinion
Unfavourable Opinion