CareHD

• Research type

  Research Study

• Full title

  Patient Centered Connected Health Model for Huntington’s Disease

• IRAS ID

  275918

• Contact name

  Daniela Rae

• Contact email

  d.rae@nhs.net

• Sponsor organisation

  University College Dublin

• Clinicaltrials.gov Identifier

  777991, Grant Agreement Number

• Duration of Study in the UK

  0 years, 10 months, 31 days

• Research summary

  CareHD is a Horizon 2020 research project research project investigating how the use of Connected Health (CH) technologies may support and improve the care of people living with Huntington’s Disease (HD). This study will examine the clinical care pathway, process of care and lived experience of people living with HD and their families in order to identify the key points at which CH technologies could be utilised to improve care and quality of life. This project is divided into 8 work packages:
  WP1 Care Pathway Mapping
  WP2 Patient Journey Mapping
  WP3 Connected Health
  WP4 Costing
  WP5 Bring your own device
  WP6 Ecosystem integration
  WP7 Management
  WP8 Dissemination

• REC name

  South Central - Hampshire B Research Ethics Committee

• REC reference

  20/SC/0066

• Date of REC Opinion

  9 Mar 2020

• REC opinion

  Unfavourable Opinion