Caregiver experiences on Ethnic differences in dementia care from GPs
Research type
Research Study
Full title
Family caregivers experiences on ethnic disparities in quality of care received by dementia patients from GPs.
IRAS ID
220590
Contact name
Zainab Al-Attabi
Contact email
Sponsor organisation
Anglia Ruskin University
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
0 years, 6 months, 1 days
Research summary
Globally, dementia cases account for more deaths than HIV/AIDS (Batsch and Mittelman, 2012). Dementia risk factors are more common in blacks and ethnic minorities (BME) than whites in the UK (All Party Parliamentary Group (APPG), 2013), however, diagnosis and treatment among BME are lower (APPG, 2013; Adelman, 2010) and diagnosed at late stage or not at all (APPG, 2013). Their referral to specialist services is lower than whites (Adelman, 2010; Cooper, et al., 2010), and the UK Department of Health has recommended better dementia diagnosis among these ethnicities (APPG, 2013).
Recent studies that examine the language used around dementia indicates that stigma exists in the general population (Oscar, 2017), and there is also research that indicates there are cultural differences in how dementia is perceived (Pang, 2017; Adebiyi, 2016), which may contribute to BME dementia patients and their families delaying help-seeking, particularly if combined with a perception that their health provider holds a bias about them (Alegria and Louis, 2009).GPs are often the first professionals that Dementia patients interact with in the UK. GPs are responsible for a diagnosis of Dementia and referrals (Alzheimer's Society, 2013). There are no studies that have explored perceptions of family caregivers with the care received by whites compared to BME dementia patients from GPs, especially around the role of culture in the diagnosis and treatment process and how this may relate to what we already know about stigma. This study aims to do that.
Method:
Qualitative study: individual in-depth interviews will be conducted using a semi-structured interview protocol that will cover caregivers' experiences of GP services. The study will recruit 30-40 participants from support groups, charities and through public notice-boards in Anglia Ruskin University in England. White and BME family caregivers will be recruited, consented, and interviewed, and their interviews will be analysed thematically.REC name
East of Scotland Research Ethics Service REC 1
REC reference
17/ES/0156
Date of REC Opinion
21 Nov 2017
REC opinion
Favourable Opinion