Care at the end of life following an acute stroke
Research type
Research Study
Full title
Dying from acute stroke: orchestrating an autoethnographic sonata of care
IRAS ID
228637
Contact name
Andrew John Bagnall
Contact email
Duration of Study in the UK
1 years, 9 months, 31 days
Research summary
Patients who have experienced acute stroke have been identified as having a high prevalence of palliative care needs (Burton, et al., 2010) and in parts of the United Kingdom (UK) such care has been adopted as key components of specialist stroke care (Gardiner, et al., 2013). It appears the transition from acute to palliative within stroke care remains problematic (Gardiner, et al., 2013) and in particular, identifying when someone is nearing the end of their life and the need to discontinue inappropriate investigations and unnecessary treatments.
This study aims to draw together my experiences as researcher and the bereaved family members of patients cared for within an acute stroke ward. A Sonata Framework (Appendix 1) created by the researcher will be utilised to frame the research, comprising four parts with additional beginning (prelude) and ending (coda). Its structure mirrors the narrative and duration of the onset of my Mother’s stroke and subsequent death. In musical terms, sonata form comprises four parts of varying length, speed, tone, pitch etc. which resonate with my narrative within this proposed auto-ethnographic study.REC name
West Midlands - Black Country Research Ethics Committee
REC reference
17/WM/0346
Date of REC Opinion
24 Nov 2017
REC opinion
Further Information Favourable Opinion