CANDI-hEDS
Research type
Research Study
Full title
Comprehensive Assessment of Nutrition & Dietary Intervention in Hypermobile Ehlers Danlos Syndrome (hEDS/HSD): a personalised approach: Phase I – nutritional and dietary assessment
IRAS ID
293811
Contact name
Qasim Aziz
Contact email
Sponsor organisation
Queen Marys University of London (Queen Mary)
Duration of Study in the UK
0 years, 3 months, 1 days
Research summary
Hypermobile Ehlers Danlos Syndrome (hEDS/HSD) patients commonly suffer from Functional Gastrointestinal disorders (FGID), i.e. problems with the function rather than the structure of their gut. Symptoms include premature fullness and discomfort after eating regular sized meals (functional dyspepsia) or lower abdominal pain, altered bowel habit and bloating (irritable bowel syndrome) to name but a few. The most widely recognised trigger of symptoms is food, and diet is often the first lifestyle change that patients make to avoid symptoms. Yet there is little evidence regarding which dietary approaches are most likely to improve symptoms and quality of life for this patient group.
In this study we aim to assess the existing diets of EDS UK members and compare this to patients attending our Neurogastroenterology clinic at the Royal London Hospital and University College Hospital.
This study will form the basis of a future planned feasibility study which will be dietician-led, aimed at determining if broadening diets and optimising nutrition in a personalised approach will have an impact on symptoms and quality of life.
REC name
London - Westminster Research Ethics Committee
REC reference
21/PR/0916
Date of REC Opinion
12 Jul 2021
REC opinion
Further Information Favourable Opinion