Cancer Survivorship Studies
Research type
Research Database
IRAS ID
274569
Contact name
Michael M Hawkins
Contact email
Research summary
Cancer Survivorship Studies
REC name
London - South East Research Ethics Committee
REC reference
21/LO/0133
Date of REC Opinion
23 Feb 2021
REC opinion
Favourable Opinion
Data collection arrangements
Individual patient record linkage of two population-based national cohorts (British Childhood Cancer Survivor Study (BCCSS) and the Teenage and Young Adult Cancer Survivor Study (TYACSS)) to several national registries/databases of adverse health and social outcomes.
We shall extend the electronic record linkage between each of the BCCSS and TYACSS cohorts and: the national death and cancer registries, the national hospitalisation databases, the national cardiovascular databases, the national GP prescription databases and the national community mental health services databases. This will provide ascertainment of all: deaths with details of underlying cause; subsequent primary neoplasms diagnosed; outpatient, inpatient and emergency care episodes at NHS hospitals; cardiovascular events and procedures, GP prescriptions dispensed to survivors; mental health services used within the community. Linkage to national databases relating to educational attainment and employment status will be undertaken.
Research programme
Establish a comprehensive system to monitor the risks of adverse health and social outcomes among survivors of childhood, teenage and young adult cancer in Britain using two existing national population-based cohorts, the British Childhood Cancer Survivor Study (BCCSS) and the Teenage and Young Adult Cancer Survivor Study (TYACSS).
Research database title
Cancer Survivorship Studies
Establishment organisation
The University of Birmingham
Establishment organisation address
Centre for Childhood Cancer Survivor Studies
Institute of Applied Health Research
Robert Aitken Building
B15 2TT