CAMHS FND Illness Perceptions
Research type
Research Study
Full title
A qualitative exploration of illness perceptions in children and young people with Functional Neurological Disorder
IRAS ID
360895
Contact name
Jenny Paisley
Contact email
Sponsor organisation
University of Edinburgh
Duration of Study in the UK
0 years, 11 months, 18 days
Research summary
Functional Neurological Disorder (FND) is a common but often misunderstood condition. It affects how the brain sends and receives messages, leading to symptoms that resemble conditions like epilepsy or stroke but without detectable damage on brain scans. We know that FND can significantly impact quality of life, often alongside mental health challenges. Children and young people can have FND, and there is much less known about FND in this group compared to adults.
One key factor in recovery is illness perception—how a person understands their condition, including their beliefs about severity, duration, and controllability. A young person’s perception of their illness may have an impact on their wellbeing and how they engage with treatment. Since FND can be difficult to explain and most people haven’t heard of it, young people may find it challenging to understand. One influence on young people’s perception of FND could be the significant others in their lives, like their parents – what they think or feel about FND, and how they respond to the young person with FND. Understanding these factors could help us improve our understanding of how young people make sense of FND and could help improve treatment approaches and outcomes.
This study will explore illness perceptions by interviewing up to 12 children and young people, recruited by NHS clinicians in 3 areas of the central belt in Scotland. Young people recruited will also complete a survey. Young people with FND will review the interview questions. Interview transcripts will be analysed using thematic analysis, where common themes in young people’s experiences are identified.
The findings will be shared with the people who participate, and with healthcare professionals working with young people with FND.
REC name
London - West London & GTAC Research Ethics Committee
REC reference
26/LO/0353
Date of REC Opinion
4 Jun 2026
REC opinion
Further Information Favourable Opinion