BTS Idiopathic Pulmonary Fibrosis and Sarcoidosis Registry
Research type
Research Database
IRAS ID
233049
Contact name
Monica Spiteri
Contact email
Research summary
British Thoracic Society Interstitial Lung Disease Registry Project
REC name
East of England - Cambridge Central Research Ethics Committee
REC reference
17/EE/0346
Date of REC Opinion
20 Oct 2017
REC opinion
Further Information Favourable Opinion
Data collection arrangements
Subjects will be individuals with a new diagnosis of either sarcoidosis or idiopathic pulmonary fibrosis. Data collected will be demographic information together with routine clinical data (blood test results, biopsy results, lung function data, etc.). Annual information on outcome, changes in treatment and clinical parameters will be collected for all individuals entered on to the database. The data collection templates are included with the application for information.
Research programme
The database provides an easily accessed system for prospective data collection in a large number of patients so that the public health and epidemiological status of these conditions in the UK can be established. In turn, this will support the development of research programmes by the UK respiratory research community under the aegis of the British Thoracic Society. The data collected should facilitate the recruitment of individuals in to clinical research trials and will enable the first detailed epidemiological studies of these patient groups in the UK to be undertaken.
Research database title
British Thoracic Society Interstitial Lung Disease Registry Project
Establishment organisation
British Thoracic Society
Establishment organisation address
17 Doughty Street
London
WC1N 2PL