BSR ePROM RD
Research type
Research Database
IRAS ID
287909
Contact name
James Galloway
Contact email
Research summary
BSR ePROM Research Database
REC name
East of England - Cambridge East Research Ethics Committee
REC reference
20/EE/0236
Date of REC Opinion
9 Mar 2021
REC opinion
Further Information Favourable Opinion
Data collection arrangements
NEIAA is a national programme collecting information on the care of people with arthritis in the NHS. We are seeking to create a pseudonymous dataset for research from NEIAA. The dataset will include no personal or sensitive information. \n\nThe data will include a unique identifier, age, gender, deprivation level (using the index of multiple deprivation rank), work status (employed / unemployed) and comorbidities. Information on delays in referral to hospital and subsequent delays in treatment. Information on disease severity (using numeric scores) and treatment responses will be collected again at 3 and 12 months after diagnosis. No free text fields are collected.\n\nDates of events that are recorded in NEIAA will be changed in the research dataset to prevent any researcher from being able to re-identify an individual.\n\nNo additional data will be collected for the research database beyond what is already collected for NEIAA.
Research programme
The ability to create a research database from NEIAA will provide wide opportunities to the research community in the following areas including but not limited to:\n\n1. Health services research (how can we improve quality of care and reduce variation in the NHS)\n\n2. Predictors of early treatment outcomes in inflammatory arthritis (how different treatment strategies work in the real world)\n\n3. What is the impact of inflammatory arthritis (in terms of quality of life, economic impact and NHS impact).
Research database title
BSR ePROM Research Database
Establishment organisation
King's College London
Establishment organisation address
Provost/Senior Vice President (Health) . KCL Guys Campus,
London
SE1 9RT