Black & Minority Ethnic children with life-limiting conditions
Research type
Research Study
Full title
Black and Minority Ethnic children with life-limiting conditions - a mixed methods study
IRAS ID
174874
Contact name
Wahida Kent
Contact email
Sponsor organisation
Cardiff University
Duration of Study in the UK
0 years, 5 months, 14 days
Research summary
This will be a mixed methods study.
Quantitative research
The aim of the quantitative element is to describe the population of BME disabled children and those with life-limiting conditions, to see if there are differences in terms of social demographics and illness types between ethnic minorities (as a group) and the ethnic majority. The potential of routine data in Wales has already been explored and due to the small proportion of BME individuals in the population (4.4%) it is difficult to anonymise data in relation to this group. Instead, an anonymised and publicly available dataset will be used, namely the Millennium Cohort Study, a longitudinal study which contains information regarding children, their ethnic group, religion, and health status. Use of this existing anonymised data set does not require ethical approval.
Qualitative research
This will involve interviews with the parent carers of BME children with life-limiting conditions and also professionals working in this area. I anticipate recruiting a minimum of 30 participants via this route. They will all be invited to participate in interviews. Interviews should last about one hour. The aim is to gather information of the experiences of the carers of BME children with life-limiting illnesses to explore their support networks - formal and informal. And to identify reasons for not accessing such services, and any barriers encountered, and strategies for overcoming these.
REC name
North of Scotland Research Ethics Committee 2
REC reference
15/NS/0105
Date of REC Opinion
27 Nov 2015
REC opinion
Further Information Favourable Opinion