Benefits, risks & barriers of patient-held electronic health records
Research type
Research Study
Full title
Benefits, risks and barriers of using patient-controlled electronic health records
IRAS ID
149059
Contact name
Ann Blandford
Contact email
Sponsor organisation
University College of London
Research summary
This study examines the use of patient-controlled electronic health records that can be accessed by patients, carers, physicians and nurses. The electronic patient health record allows patients (or parents in the case of paediatric patients) to see their data and control the access of their physicians. The aim of patient control is to provide a legal framework for sharing clinical data with all clinical teams to increase clinical safety. The system has been deployed in over 25 hospitals and tested for safety and clinical efficiency in proof of concept studies. The aim of this study is to better understand the problems and challenges of such a system as well as the specific needs for information ad support of each user group.
Participants will be a group of patients and their corresponding carers, doctors and nurses of the inflammatory bowel disease (IBD) department of the Great Ormond Street Hospital. This department has recently introduced patient-controlled electronic health records in its daily routine.
Observations of system use and Think Aloud Studies will be conducted and system users will be interviewed on their experience using the patient health record.
The qualitative data collected will be analysed anonymously to describe the context in which the patient health records are used, the associated requirements and constraints, and issues with current system designs.
REC name
North of Scotland Research Ethics Committee 2
REC reference
14/NS/0045
Date of REC Opinion
21 Mar 2014
REC opinion
Further Information Favourable Opinion