BBC-NCRN Breast Cancer Genetics Study

  • Research type

    Research Study

  • Full title

    Identification and Characterization of Breast Cancer Susceptibility Genes Using the British Breast Cancer Study (BBC-NCRN)

  • IRAS ID

    363422

  • Contact name

    Richard Houlston

  • Contact email

    richard.houlston@icr.ac.uk

  • Sponsor organisation

    ICR

  • Duration of Study in the UK

    5 years, 0 months, 0 days

  • Research summary

    This study aims to uncover new genetic factors linked to breast cancer using samples from 25,000 women diagnosed with the disease, collected through the BBC-NCRN study. These samples, including buffy coat and DNA, will be sent from the Institute of Cancer Research (ICR) and Oxford University to the Regeneron Genetics Center (RGC) in the USA for advanced genetic analysis. RGC will extract DNA, perform genotyping, and sequence the samples to identify new cancer susceptibility genes and better understand known ones, such as BRCA1, BRCA2, ATM, CHEK2, and PALB2. The genetic data from these cases will be compared with data from 500,000 healthy individuals in the UK Biobank, previously sequenced by RGC, to pinpoint differences that may explain breast cancer risk.
    All samples sent to RGC will be anonymized, ensuring privacy, with RGC acting as a data processor. Processed data will return to the ICR for analysis. Although the BBC-NCRN study ended years ago, this project seeks permission to use these samples and transfer them to RGC. By partnering with RGC, which will cover sequencing costs, this study overcomes funding barriers to conduct large-scale genetic research. Discovering new genetic variants and understanding their role in breast cancer could lead to better prevention, early detection, and personalized treatments, ultimately improving outcomes for women at risk.

  • REC name

    South Central - Hampshire B Research Ethics Committee

  • REC reference

    25/SC/0400

  • Date of REC Opinion

    15 Jan 2026

  • REC opinion

    Further Information Favourable Opinion