BAPQ development study

  • Research type

    Research Study

  • Full title

    BAPQ development study: Semi-structured interviews to develop a Brace Adherence Prediction Questionnaire (BAPQ) in Adolescent Idiopathic Scoliosis

  • IRAS ID

    296460

  • Contact name

    Raveen Jayasuriya

  • Contact email

    raveen.jayasuriya@nhs.net

  • Sponsor organisation

    Sheffield Children's NHS Foundation Trust

  • Duration of Study in the UK

    0 years, 11 months, 30 days

  • Research summary

    Scoliosis is a curvature to the side and rotation of the spine. It can cause considerable distress primarily because of the appearance, but significant curves can cause problems with the heart, lungs and pain. The majority of scoliosis begins in early adolescents and has no underlying cause. Curves of 20-40 degrees are offered back brace, to prevent the curve getting worse, when at 50 degrees high risk surgery may be recommended.

    The landmark BrAIST trial demonstrated that the success of full-time brace treatment, (in preventing the need for surgery), is adherence dependent, suggesting wear time of more than 18hours. Whilst the efficacy of bracing is established, the acceptability of the treatment to adolescents remains unclear. We must endeavour to understand the psychological factors which influence adolescent patients to wear their brace as prescribed. Understanding these psychological factors may provide a method of predicting a patient’s compliance, and thus tailor treatment by way of: choice of brace type, identifying patients who need additional support and individualising progression risk.

    This study will explore factors that patient and parents/guardians state affect brace adherence through 20-30 semi-structured interviews with patients currently undergoing brace treatment. The analysis of these interviews will identify key themes and inform the development of a new questionnaire, based on psychological framework (Protection Motivation Theory), to predict patient adherence to brace wear.

    This new questionnaire will be validated through the upcoming NIHR multi-centre BASIS study, which will be using sensors placed in both full-time (FTB) and night-time (NTB) braces to objectively measure brace adherence.

  • REC name

    East Midlands - Leicester South Research Ethics Committee

  • REC reference

    21/EM/0178

  • Date of REC Opinion

    5 Aug 2021

  • REC opinion

    Further Information Favourable Opinion