Bangladeshi patients’ experiences of living with IBD

• Research type

  Research Study

• Full title

  Exploring experiences of Inflammatory Bowel Disease (IBD) amongst Bangladeshi patients: A mixed methods feasibility study

• IRAS ID

  273831

• Contact name

  Paul Newton

• Contact email

  P.D.Newton@greenwich.ac.uk

• Sponsor organisation

  University of Greenwich

• Duration of Study in the UK

  1 years, 0 months, 0 days

• Research summary

  Inflammatory bowel disease (IBD) is a long term, incurable family of diseases including Crohn’s Disease, Ulcerative Colitis and IBD Unclassified, with no proven cause. IBD mostly affects Western Caucasian populations, though incidence is rising amongst other ethnic groups worldwide. Experiences of these ethnic groups have not been studied widely in research, particularly those who do not speak English fluently. There are likely relevant cultural, religious and personal factors within these communities, which influence patients' experiences of IBD. However, with little clear evidence from non-English speakers, clinicians may be blind to these needs and are less likely to deliver culturally-sensitive care or providing disease-specific information in the most appropriate language for patients e.g. treatment advice about medicines and surgery.
  This mixed methods project aims to explore the feasibility (the degree we can do research in an area) of capturing the experiences of Bangladeshi people living with IBD, which will be the basis for developing a larger study with a range of UK ethnic minority communities. There are four project phases: Phase 1) Literature review of ethnic minority patients' experiences of living with IBD (or related bowel conditions) in the UK, USA or European Union; Phase 2) One to one semi-structured interviews on experiences of living with IBD with up to 10 Bangladeshi patients; Phase 3) Survey development on experiences of living with IBD from phase 1 and 2 findings will be tested with 50 Bangladeshi patients; Phase 4) Group workshop to present findings from phase 1, 2 and 3 and achieve decisions/consensus for next steps for the larger study, from key stakeholders (e.g. healthcare professionals) and Bangladeshi patients/caregivers . Participants will be given translated written study materials, and in cases where patients are not able to read these materials the bilingual Research Fellow will be present to verbally explain them.

• REC name

  Wales REC 6

• REC reference

  20/WA/0024

• Date of REC Opinion

  22 Jan 2020

• REC opinion

  Favourable Opinion