Autistic Adults' Experience of Social Trauma

  • Research type

    Research Study

  • Full title

    Autistic Adults' Experience of Social Trauma: An Interpretive Phenomenological Analysis

  • IRAS ID

    322252

  • Contact name

    Caitlin Green

  • Contact email

    caitlin.green@uea.ac.uk

  • Sponsor organisation

    University of East Anglia

  • Duration of Study in the UK

    1 years, 3 months, 29 days

  • Research summary

    Summary of Research
    The aim of this study is to investigate how autistic individuals make sense of adverse social events, which can have a lasting negative effect and are known as 'social trauma'. Previous research has suggested that traits such as sensory sensitivity, social awareness, and cognitive processing may influence how events are interpreted. However, there is a lack of research directly exploring how autistic adults make sense of socially traumatic events. Furthermore, receiving a diagnosis in adulthood provides an opportunity for individuals to make sense of past events differently and re-evaluate their self-identity in a more positive way. However, it remains unknown whether having an autism diagnosis in adulthood impacts on their interpretations. This study will recruit participants over the age of 18, from a local Autism NHS service, who have received an autism diagnosis at least three months prior, and will use individual semi-structured interviews to collect data on their lived experiences. Interviews will be analysed using Interpretive Phenomenological Analysis. It is hoped that this study will develop a greater understanding of the experiences of people with Autism and socially traumatic experiences.

    Summary of Results
    Certain social experiences can be difficult or even traumatic to autistic adults. There is a lack of research asking their lived experiences. This study aimed to explore how they make sense of socially traumatic events. It recruited 6 autistic adults from an adult autism diagnostic service in the NHS. All participants received their diagnosis in adulthood. They discussed their experiences in a semi-structured interview. The researcher analysed the interviews using Interpretive Phenomenological Analysis (IPA) and found four themes: (1) experiencing social trauma, (2) making sense of socially traumatic experiences, (3) how I manage social trauma, (4) re-examining social trauma with a new lens. Participants described experiences of rejection, exclusion, and humiliation as socially traumatic. Receiving a late diagnosis helped them to consider the role of autistic traits in these experiences and foster self-compassion.

  • REC name

    Yorkshire & The Humber - Sheffield Research Ethics Committee

  • REC reference

    23/YH/0143

  • Date of REC Opinion

    7 Jul 2023

  • REC opinion

    Favourable Opinion