ATLAS-PD
Research type
Research Study
Full title
Acceptability and feasibility study of patient experience and response to the creation of an educational video on Advanced Infusion Therapy for People with Parkinson’s.
IRAS ID
345757
Contact name
Mubasher A Qamar
Contact email
Sponsor organisation
King’s College Hospital NHS Foundation Trust
Duration of Study in the UK
2 years, 0 months, 0 days
Research summary
This research study aims to evaluate the feasibility and impact of an educational video designed for patients with Parkinson’s Disease (PD) who are referred for advanced therapy at the King’s Parkinson’s Disease Centre of Excellence (PD CoE). Parkinson’s Disease is a progressive neurological disorder that affects movement and can lead to significant disability. Advanced therapies, such as infusion treatments, offer potential benefits but can be complex and difficult for patients to understand.
The educational video has been professionally produced and includes patient testimonies, explanations from healthcare professionals, and animations illustrating the advanced therapies available at King’s. The primary objective of this study is to assess how well the video helps patients understand their treatment options, reduces the time needed for initial consultations, and empowers patients to participate more actively in their care decisions.
The study will involve several key phases over 24 months, including the preparation of materials, recruitment of participants, intervention (video viewing), immediate post-viewing assessments, follow-up assessments, data analysis, and reporting. We will recruit 30 patients with Parkinson’s Disease who are referred for advanced therapy. Participants will complete surveys before and after watching the video, as well as follow-up surveys and interviews to gather in-depth feedback on their experience.
By evaluating patient feedback, engagement, and understanding of the video content, this study aims to provide insights into the acceptability and feasibility of using educational videos in clinical practice. The findings will help us determine if such videos can improve patient consultations, empower patients, and enhance their overall quality of life. The results of this study will be shared with the public, healthcare providers, and patient advocacy groups to inform future research and improve care for patients with Parkinson’s Disease.
REC name
London - Harrow Research Ethics Committee
REC reference
25/PR/0782
Date of REC Opinion
22 Sep 2025
REC opinion
Further Information Favourable Opinion