'Asian Indian' caregivers' experience of dementia services.
Research type
Research Study
Full title
A qualitative investigation of caregivers' experiences from an 'Asian Indian' population in the UK with dementia services post-diagnosis.
IRAS ID
260757
Contact name
Nick Francis
Contact email
Sponsor organisation
University of Surrey
Duration of Study in the UK
0 years, 9 months, 6 days
Research summary
Black and Minority Ethnicities (BAME) are less likely to access dementia services in the UK. BAME populations access dementia services later than their White British counterparts and so receive a diagnosis later in the course of the illness (Tuerk and Suer, 2015; Cook et al., 2018). Significant barriers exist for BAME populations to accessing dementia services such as language, cultural misunderstandings, stigma and different understandings of what dementia is (Mukadam, Cooper and Livingston, 2011; Parveen, Peltier and Oyebode, 2017). Therefore these populations receive less support and are underrepresented in dementia services.
The All Party Parliamentary Group on Dementia (2013) described the need to improve BAME access for dementia diagnosis and support. Cook et al., (2018) showed in London, there had been an improvement in the amount of referrals made to dementia services for BAME populations and that it has reached parity with other ethnicities. The research does not show whether people actually attended the assessments following referral. It does not show whether after receiving the diagnosis, BAME individuals accessed the service for support and whether barriers still existed.
‘Asian Indian’ familial caregivers will be interviewed. Caregivers are required as many people with dementia from these populations receive a diagnosis later in the course of the illness and therefore may be cognitively unable to carry out interviews. Due to the nature of the illness, caregivers are likely to have to engage with the service on behalf of the cared for person. Therefore the caregivers’ experience is crucial in understanding if barriers exist following diagnosis.
Interviews will focus on the caregivers’ experiences of the service and what support, if any, they have used and found useful. This will identify if barriers to services persist following diagnosis.REC name
HSC REC B
REC reference
19/NI/0074
Date of REC Opinion
15 Apr 2019
REC opinion
Further Information Favourable Opinion