ASCOT-TM_Pilot Study_v1
Research type
Research Study
Full title
A Pilot Study using the Talking Mats version of the Adult Social Care Outcomes Toolkit to Investigate the Social Care Related Quality of Life of Adults with Intellectual and Developmental Disabilities
IRAS ID
240636
Contact name
Jill Bradshaw
Contact email
Sponsor organisation
University of Kent
Duration of Study in the UK
1 years, 2 months, 31 days
Research summary
The Adult Social Care Outcomes Toolkit measures social care related quality of life outcomes of people living in residential and community settings and forms part of the Adult Social Care Survey which local authorities are required to complete annually (Department of Health, 2012). Social care related quality of life are aspects of a person’s life that could reasonably be expected to be affected by the provision of care and support that is not provided by family or unpaid carers (social care services and interventions) (Personal Social Services Research Unit, 2018).
The Adult Social Care Outcomes Toolkit endeavours to gather the views of the person in relation to their social care related quality of life through interviews and questionnaires. However, many people in receipt of care services, including those with intellectual and developmental disabilities, have comprehension (cognitive) and communication difficulties which prevent them from expressing their views effectively using traditional methods.
Talking Mats enhance the understanding and communication of people with limited cognitive and communication abilities. Using pictures, it provides a visual framework that enables the person to organise, reflect and review their thoughts in relation to the questions being asked.
This study seeks to conduct face-to-face interviews with up to 30 adults with intellectual and developmental disabilities living in residential and community settings using the Adult Social Care Outcomes Toolkit-Talking Mats resource. It will assess whether this resource enables these people to make a meaningful contribution to assessment of their social care related quality of life and evaluation of the services they receive. Researchers will identify its limitations and suggest adaptations. They will summarise what people have to say about their social care related quality of life, contrasting and comparing this with wider research findings that comment on the quality of life of people with intellectual and developmental disabilities.
REC name
North East - Newcastle & North Tyneside 2 Research Ethics Committee
REC reference
18/NE/0130
Date of REC Opinion
6 Jun 2018
REC opinion
Further Information Favourable Opinion