Applying knowledge and aspirations in palliative care
Research type
Research Study
Full title
Authentic care: investigating the application of knowledge and aspirations in both palliative and end of life care for the generalist registered nurse workforce.
IRAS ID
185159
Contact name
Benjamin M Turton
Contact email
Sponsor organisation
University of Liverpool
Clinicaltrials.gov Identifier
Wales 5, 15/WA0420
Duration of Study in the UK
0 years, 6 months, 1 days
Research summary
The study will take an ethnographic approach in order to identify and explain how nurses adjust when patient needs shift from ‘cure’ to palliative and end of life priorities. Where bio-psycho-social-spiritual symptoms, a decline in well-being and the impact of dying on daily and future lives become the focus of care. The study seeks to explain what forces influence the circumstances nurses’ find themselves in, how nurses justify their daily work, and who is involved in nurses’ adjustment work in the provision of palliative and end of life care. The fieldwork will take place over four-six months at two sites both of which are acute stroke wards in university hospitals.
Methods of data collection include:
• Interviews with nurses and observations and shadowing of nurses and events: Participants will be eligible for interviews and observations if they are over 18 years old, have the capacity to consent and are employed as a registered nurse at the acute stroke wards. The duration of interviews will be about one hour.
• Interviews with extra-local informants: The extra local informants will be highlighted by nurses during the interviews they must be professionals who are over 18 years old, have the capacity to consent, and influence nursing care.
• Document collection: Documents will include the textual discourses which seek to standardise and maintain high quality care including policies, guidelines and methods of communication.REC name
Wales REC 5
REC reference
15/WA/0420
Date of REC Opinion
24 Nov 2015
REC opinion
Unfavourable Opinion