Antenatal information for pregnant women with LD (phase 4) version2
Research type
Research Study
Full title
To what extent are midwives adapting antenatal information to meet the needs of pregnant women with intellectual disabilities? Phase 4: Semi-structured interviews involving women with an intellectual disability (ID) who are currently pregnant or recently gave birth.
IRAS ID
184098
Contact name
Evridiki Patelarou
Contact email
Duration of Study in the UK
2 years, 0 months, 1 days
Research summary
Deinstitutionalisation since the 1980’s has been credited with improving the lives of people with learning disabilities (Balogh et al 2008); with larger numbers of people living in the community. Changing attitudes alongside integration, more independent living and recognition of rights to family life has meant a steady rise in those becoming pregnant and becoming parents (Mayes et al., 2006, Tarleton & Ward 2007). This population suffers from an increased exposure to economic and social disadvantage (Llewellyn & McConnell 2002; Llewellyn et al. 2003; Emerson 2011), which is known to have an adverse effect on health and wellbeing during pregnancy and poorer birth and pregnancy outcomes (Lewis 2007; Höglund 2013). This issue was raised by two Confidential Enquiries into Maternal and Child Health (Lewis 2007; CMACE 2011), with women who lived in the poorest circumstances up to seven times more likely to die than women from other demographic groups. These women were also far less likely to seek or attend for regular antenatal care (Lewis 2007). One element of social disadvantage is limited access to information about health. Provision of accessible information can greatly improve ‘patients’ experiences and outcomes, while failure to do so can have far-reaching negative consequences for them (DH 2010). Access and engagement during the antenatal period is therefore particularly important and offers a key public health opportunity for practitioners to engage with this group of women (Lewis 2007).
Aims:
To describe the experiences of women with learning disabilities re: provision of antenatal information during pregnancy.To explore the views and opinions of women with learning disabilities re: provision of antenatal information during pregnancy.
REC name
London - Camberwell St Giles Research Ethics Committee
REC reference
15/LO/1328
Date of REC Opinion
25 Sep 2015
REC opinion
Further Information Favourable Opinion