An outcome tool in audiology for people with learning disabilities
Research type
Research Study
Full title
Design and optimisation of a self-reported outcome measure tool in Audiology for patients with learning dissabilities.
IRAS ID
203603
Contact name
Alice Roberts
Contact email
Sponsor organisation
The University of Manchester
Duration of Study in the UK
0 years, 11 months, 31 days
Research summary
Self-reported outcome measures indicate a patient's health status or health-related quality-of-life at a given point in time and provides an indication of the quality of care given to our NHS patients.
Previously, services have excluded patients with learning disabilities from routine patient monitoring and quality improvement schemes. As such people with low literacy skills and learning disabilities are also often excluded from the outcome measure development and as a result the measures may not be accessible to them.
It is well documented that self-reported outcome measures can differ greatly to that of a significant other/caregiver report. This suggests that if we base our healthcare on significant other/caregiver reports we may not actually target the person’s specific health needs (Jahagirdir et al. 2012)
Current standards in audiology requires that outcome measures are completed for all suitable patients (NHS Scotland, 2009). A tool has been developed, and is in the process of being validated, which evaluates needs met for people without learning disabilities using a 0-100 scale with 100 being the best score (Meyer et al., TBC). However there is currently no alternative for people with learning disabilities. The purpose of this review is to design and optimise a self-reported outcome tool for Audiology which is accessible and easily administered in routine clinic for people with learning diabilities.
REC name
Wales REC 5
REC reference
16/WA/0203
Date of REC Opinion
15 Aug 2016
REC opinion
Further Information Favourable Opinion