An exploration of stories of people who are end of life aged 16-24 yrs
Research type
Research Study
Full title
An exploration of stories of people who are end of life aged 16-24 years using Narrative analysis.
IRAS ID
224690
Contact name
Krystina Crolla-Barker
Contact email
Sponsor organisation
Manchester Metropolitan University
Duration of Study in the UK
3 years, 1 months, 1 days
Research summary
The number of people getting a diagnosis of cancer is rising; within the North West further research is required to explore people’s lives and experiences who are affected by a poor prognosis. The aim of the research is to explore the life stories of young people who are affected by cancer, with questions relating to before diagnosis and after diagnosis. The aim is to further understand the impact of the diagnosis, social well-being and factors that are important to the participants. This will help to identify and synthesize “best practice” methods in palliative care and explore what makes a dying easier from the viewpoint of the patient experiencing it.
The study will consist of teenagers and young adults (TYA) aged 16-24 years with a diagnosis of cancer, who are considered palliative. The study aims to have 5-8 people interviewed, in order to gather a variety of opinions and experiences. The participants will be from the North West of the UK and will be recruited using Participant Identification Centres (of which there have been 3 identified). The participants will be invited to an interview which will last no more than one and a half hours.The interviews will be audio recorded which will then be transcribed by the lead researcher. The analysis will be done using a narrative analysis approach.
The participants will have one interview to gather the data, however if they present with circumstances in which they have not been able to share all their views within the interview, e.g. increased fatigue, then there is an opportunity for them to be offered a second interview. The second interview will be arranged at the convenience of the participant. If the participant declines a second interview then the data gathered from the initial interview will be used for analysis (unless consent withdrawn.REC name
North West - Greater Manchester Central Research Ethics Committee
REC reference
18/NW/0014
Date of REC Opinion
27 Feb 2018
REC opinion
Further Information Favourable Opinion