An exploration of palliative care services for people with COPD

  • Research type

    Research Study

  • Full title

    A qualitative study exploring the acceptability, facilitators and barriers to accessing palliative care services for people living with end stage chronic obstructive pulmonary disease (COPD).

  • IRAS ID

    244443

  • Contact name

    Caroline Sime

  • Contact email

    caroline.sime@uws.ac.uk

  • Duration of Study in the UK

    0 years, 5 months, 31 days

  • Research summary

    In Scotland, there are approximately 100,000 people diagnosed with chronic obstructive pulmonary disease (COPD). In the later stages of this illness, people experience breathlessness, exhaustion, pain and social isolation and may benefit from a palliative to their care.

    The aim of this study is to develop current understanding of the acceptability of providing palliative care to people living with advanced COPD.

    This is a small qualitative study which will explore the experiences and perceptions of two groups of patients. Twenty patients with advanced COPD will be interviewed. Ten people will be recruited from the northwest of Glasgow City (with no current access to a palliative care clinic), and ten recruited from the south of the city (and will have attended a palliative care clinic at least once), thereby allowing us to explore and compare these two models of care.

    Data will be analysed using framework analysis to identify similarities and differences in the data. Framework analysis is distinct from other forms of qualitative analysis in that it uses a matrix system whereby data are summarised by rows (cases) and columns (codes). This approach provides a structure so that the researcher can systematically reduce the data, in order to analyse by case and by code

    The analysis will aim to describe patient perceptions, needs, experiences, ideas for improvement and understanding of diagnosis and prognosis, in order to inform the development of future service improvement.

  • REC name

    West of Scotland REC 3

  • REC reference

    18/WS/0122

  • Date of REC Opinion

    4 Jul 2018

  • REC opinion

    Favourable Opinion