An evaluation of the My PICU Story Mobile Application
Research type
Research Study
Full title
An evaluation of the acceptability, usability and usefulness of the My PICU Story mobile application, and its impact on emotional and psychological wellbeing, for children and families admitted to the Paediatric Intensive Care Unit.
IRAS ID
328533
Contact name
Nazima Pathan
Contact email
Sponsor organisation
Cambridge University Hospitals NHS Trust
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
This pilot study will evaluate the new mobile application, My PICU Story, which has been created to support children and their families during and after admission to the Paediatric Intensive Care Unit (PICU). The app contains a digital diary, information section and support resources to support families on their PICU journey.
During this study, families admitted to PICU will be asked to download the application on their mobile phones, and shown how to use it. They will then be offered questionnaires about their experience of the app before they are discharged from hospital, and again at 4 months after their discharge from hospital. They will be able to continue using the app after they are discharged from hospital. A questionnaire will also be given to members of staff working on PICU to evaluate their views on the My PICU Story mobile application.
The results of the questionnaires will be recorded anonymously and will be analysed by the members of the research team to assess the acceptability, usability and usefulness of the mobile application, as well as its impact on family emotional wellbeing, and will be used to write up a formal report of the study.
REC name
South West - Frenchay Research Ethics Committee
REC reference
25/SW/0072
Date of REC Opinion
24 Jul 2025
REC opinion
Further Information Favourable Opinion