ACtiF - Adherence to treatment in adults with Cystic Fibrosis 2.2B

• Research type

  Research Study

• Full title

  Full programme: Development and evaluation of an intervention to support Adherence to treatment in adults with Cystic Fibrosis (ACtiF) This sub study 2.2B: A study to develop a Behaviour Change Intervention (BCI) to help patients with CF manage treatment adherence.

• IRAS ID

  184477

• Contact name

  Martin Wildman

• Contact email

  martin.wildman@sth.nhs.uk

• Research summary

  Cystic Fibrosis (CF) affects 10,000 people in the United Kingdom (UK). People with Cystic Fibrosis (PWCF) typically die from lung damage at a median age of 28 years.

  Research shows that taking preventative medications helps keep lungs in a better condition and reduce hospital admissions for patients with CF. However, adherence to medication is poor meaning patients are more likely to require hospital because of worsening symptoms. The aim of this research is to develop a behaviour change intervention (BCI) part of which is a website called CFHealthhub.

  Researchers will ask patients with CF (PWCF) who agree to take part to use the CFHealthhub website and interact with it to look at their adherence data and make suggestions on how we can improve it and make it more user friendly.
  Researchers will gather information from patients in the form of questionnaires, interviews and video-recordings of them using CFHealthhub. The feedback patients provide will help develop the website. At the end of this study, we will have a fully functioning website.

  Once developed, we will test whether this way of feeding back adherence data is better than how patients are asked to manage their adherence normally. The purpose of this research is to develop this intervention to be fit to use in a larger research study which is planned for 2017. The larger study will determine whether CFHealthhub works to help improve adherence to medication for patients with CF. CFHealthhub will eventually be available as a website and app for your mobile phones or tablets.

• REC name

  Yorkshire & The Humber - South Yorkshire Research Ethics Committee

• REC reference

  15/YH/0332

• Date of REC Opinion

  26 Aug 2015

• REC opinion

  Further Information Favourable Opinion