ACtiF - Adherence to treatment in adults with Cystic Fibrosis 2.1C

• Research type

  Research Study

• Full title

  Full programme: Development and evaluation of an intervention to support Adherence to treatment in adults with Cystic Fibrosis (ACtiF) This sub-study: A study to produce videos for the CFHealthhub website.

• IRAS ID

  182367

• Contact name

  Martin Wildman

• Sponsor organisation

  Sheffield Teaching Hospitals NHS Foundation Trust

• Duration of Study in the UK

  2 years, 3 months, 7 days

• Research summary

  Cystic Fibrosis (CF) affects 10,000 people in the United Kingdom (UK). People with Cystic Fibrosis (PWCF) typically die from lung damage at a median age of 28 years. Randomised controlled trials show that preventative medications
  reduce exacerbations and/or preserve lung function. However adherence to medication is poor. We have been funded to undertake a five year programme to develop and evaluate a new approach to helping PWCF adhere to their nebulisers. Part of this approach is development of a CF website (CFHealthhub) which will allow patients and clinicians to work together to improve patient adherence to medication. This sub-study includes a variety of components including: use of educational/instructional videos to aid better inhaler technique; and provision of videos discussing strategies to aid better adherence including discussion of barriers to treatment adherence. The videos will be made available on the CFHealthhub website.

• REC name

  London - Camden & Kings Cross Research Ethics Committee

• REC reference

  15/LO/0944

• Date of REC Opinion

  10 Jul 2015

• REC opinion

  Further Information Favourable Opinion