ACtiF - Adherence to treatment in adults with Cystic Fibrosis
Research type
Research Study
Full title
Full programme: Development and evaluation of an intervention to support Adherence to treatment in adults with Cystic Fibrosis (ACtiF) This sub-study: A study of the views of people with cystic fibrosis about their condition and treatments
IRAS ID
171049
Contact name
Alicia O'Cathain
Contact email
Sponsor organisation
Sheffield Teaching Hospitals NHS Foundation Trust
Duration of Study in the UK
0 years, 5 months, 31 days
Research summary
Cystic Fibrosis affects 10,000 people in the United Kingdom (UK). People with Cystic Fibrosis (PWCF) typically die from lung damage at a median age of 28 years. Randomised controlled trials show that preventative medications reduce exacerbations and/or preserve lung function. However adherence is poor. We have been funded to undertake a five year programme to develop and evaluate a new approach to helping PWCF adhere to their nebulisers. We will undertake a number of studies as part of this full programme and will seek ethical review for each study separately. This is the first study of the ACTIF programme and it will inform the next stages of the programme. In this study we will undertake a qualitative interview study with 20-24 adults attending the Sheffield Cystic Fibrosis Centre to explore their views about their condition, treatments and views about their nebuliser treatment in particular. This will be used, along with psychological theory, to develop an intervention to be evaluated in later stages of the programme.
REC name
South Central - Hampshire A Research Ethics Committee
REC reference
14/SC/1455
Date of REC Opinion
13 Jan 2015
REC opinion
Further Information Favourable Opinion