ACES study
Research type
Research Study
Full title
Adolescents and Children with Inflammatory Bowel Disease (IBD): Exploring their Self-Management
IRAS ID
185284
Contact name
Hilarious De Jesus
Contact email
Sponsor organisation
St. George's, University of London
Duration of Study in the UK
0 years, 9 months, 30 days
Research summary
The study is aiming to explore self-management among children and adolescents with Inflammatory Bowel Disease (IBD). The study is exploratory and seeks to define self-management and understand the factors that enables and hinders it. Self-management as a concept in IBD has already been explored in adults but not in paediatric context.
Data will be collected using interviews with topic guides and the draw-and-write technique. The interview will be about the experience of the disease, self-directed and healthcare-directed strategies to manage their disease and its outcomes. The draw-and-write technique will be used as an optional adjunct to serve as a springboard for the interview. The participant will explain the drawing to the researcher. Children and young persons aged 8-17 years old will be recruited from a paediatric IBD centre.
The data will be analysed using grounded theory, a qualitative method for research. The analysis will develop a theory that will include themes and concepts that will shed light around the phenomenon of self-management in paediatric IBD. This can serve as a starting point for further projects such as establishing a framework to support self-management in routine clinical care or hypothesis to test in interventional studies.REC name
South West - Cornwall & Plymouth Research Ethics Committee
REC reference
15/SW/0334
Date of REC Opinion
20 Nov 2015
REC opinion
Further Information Favourable Opinion