Accessible Results Study

  • Research type

    Research Study

  • Full title

    Accessible Results: enabling patients with diverse needs to access and understand their blood test results online

  • IRAS ID

    349062

  • Contact name

    Jessica Watson

  • Contact email

    jessica.watson@bristol.ac.uk

  • Sponsor organisation

    University of Bristol

  • Duration of Study in the UK

    1 years, 11 months, 30 days

  • Research summary

    BACKGROUND

    NHS England has introduced ways for patients to see their test results online through the NHS App and other platforms. Making these results easy to access and understand is important because it could improve patient engagement. It could also lead to patient anxiety and could mean more patients contact their GP practices increasing their workload.

    Patients need to know what to do next when they receive a test result; if this is not communicated well then patients could come to harm. It is important to make sure that all patients can understand their test result, and that no groups are disadvantaged by the move to online test result communication.

    AIMS

    The aim of this research is to develop tools and guidance to help patients with a wide range of needs to access and understand their online blood test results.

    METHODS

    We will use the ‘person-based approach’, which is an established method for engaging diverse users in developing health interventions. The project will involve the following work packages:

    Work Package 1: Interviews with patients, carers and staff to understand their needs.

    Work Package 2: Workshops to co-design draft tools and guidance.

    Work Package 3: Testing and improving the tools and guidance.

    The final result will be a set of resources to help improve how patients access test results, which might include:

    Tools to make test results easier to understand online

    Suggested language for clinicians when commenting on results

    Posters or leaflets to help patients understand their results

    Resources for patients with specific needs to help them navigate their results online

    We have and will continue to involve a diverse group of patient and public involvement and engagement contributors. They will be involved in every phase of the research including co-production of the tools for test communication.

  • REC name

    North West - Greater Manchester East Research Ethics Committee

  • REC reference

    24/NW/0385

  • Date of REC Opinion

    30 Dec 2024

  • REC opinion

    Favourable Opinion