AccessCMD: A Next Generation Registry in Cardiometabolic Disease

• Research type

  Research Tissue Bank

• IRAS ID

  334546

• Research summary

  AccessCMD: A Next Generation Registry in Cardiometabolic Disease

• REC name

  East Midlands - Derby Research Ethics Committee

• REC reference

  23/EM/0279

• Date of REC Opinion

  21 Dec 2023

• REC opinion

  Further Information Favourable Opinion

• Data collection arrangements

  DNA samples will be captured using home testing kits sent to consenting participants.
  These samples will be stored at the Queen Mary's University of London biorepository where they will be made available to researchers in line with the AccessCMD protocol.

• Research programme

  Complex cardiometabolic disease is responsible for the largest share of mortality and morbidity worldwide. With myriad complications of cardiovascular multimorbidity, healthcare costs are steadily rising. The direct estimated healthcare cost burden of, for example, downstream heart failure alone in the US is predicted to rise to $53 billion by the next decade. There is an urgent and pressing need for population-level solutions to address this rising pandemic. In the ‘at risk’ population, there are many identified and evidence-based preventative and treatment solutions to avoid and mitigate the most severe adverse outcomes. There is however a lack of implementation science solutions to making sure that preventative and treatment strategies address the widest population that can be accessed. This has been partly hampered by a lack of studies with recall consent that are truly reflective of the primary care population needed to address the question most effectively.

• Storage license

  12004

• RTBTitle

  AccessCMD: A Next Generation Registry in Cardiometabolic Disease

• Establishment organisation

  Cohort Science Ltd

• Establishment organisation address

  8 Warner Yard

  EC1R 5EY