Access, barriers, and facilitator of dementia care
Research type
Research Study
Full title
Access, barriers, and facilitators of healthcare services for people with dementia
IRAS ID
342722
Contact name
Robert Stewart
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
Dementia and Alzheimer's disease are leading causes of death in the UK, with over 65,000 deaths reported in 2022, highlighting the urgent need for effective support in the healthcare system. This study aims to explore the experiences of individuals with dementia and their caregivers as they navigate the healthcare system, from diagnosis through management and palliative care. Understanding these experiences is crucial for developing a more inclusive healthcare system that addresses all needs, especially in culturally diverse communities.
The research question focuses on how people with dementia and their carers experience healthcare services and what challenges and factors influence their access to and preferences for care. This study is particularly relevant to patients and the public as it aims to identify gaps in dementia care and inform policies to enhance support and access. By focusing on the experiences of individuals with dementia and their caregivers, the study advocates for a person-centred healthcare system that improves the quality of care and overall quality of life for those affected.
This study does not involve testing a specific drug, device, or procedure but examines dementia care services and the healthcare system's role in supporting individuals with dementia. Eligible participants include people living with dementia who have accessed healthcare services, as well as their carers, including family members and informal caregivers. The research will be conducted at the South London and Maudsley NHS Foundation Trust. The study will last for one year, with participants undergoing a single interview lasting 45 to 60 minutes. This research is funded by a PhD studentship from King's College London through the Joint PhD Scholarship.
REC name
South Central - Oxford B Research Ethics Committee
REC reference
25/SC/0149
Date of REC Opinion
17 Jun 2025
REC opinion
Further Information Favourable Opinion