A Survey on Health & Wellbeing for ACHD Vrs.1.0
Research type
Research Study
Full title
Biographical Characteristics & Psychosocial Functioning in Adults with Congenital Heart Disease (ACHD)
IRAS ID
166814
Contact name
Chris McCusker
Contact email
Duration of Study in the UK
1 years, 2 months, 29 days
Research summary
Survivors of Congenital Heart Disease (CHD) exhibited improved mortality rates throughout the last century. However, there may be poor outcomes in adulthood for this population in terms of biographical characteristics (e.g. educational attainment), self-perceived wellbeing and social adjustment. Severity of CHD, and adaptive functioning has been implicated in the literature as impacting on these outcomes, whilst an emerging view suggests that neuropsychological status may be related too.
The proposed research seeks to profile Adults with CHD (ACHD) in terms of biographical characteristics, self-perceived wellbeing, psychosocial functioning and neuropsychological status. Of secondary concern, the proposed research seeks to evaluate the relative effect of medical variables and people’s beliefs about their own adaptive functioning on biographical characteristics, self-perceived wellbeing and social adjustment in ACHD. The proposed research also seeks to determine the impact of Executive Functioning (i.e. higher order cognitive abilities, such as problem solving, planning and organisational abilities).
Selected outpatients at the regional ACHD service in Northern Ireland will be invited to take part in a survey as they wait for appointments. The survey will include seven questionnaires on the areas of concern.REC name
HSC REC B
REC reference
15/NI/0039
Date of REC Opinion
21 Apr 2015
REC opinion
Further Information Favourable Opinion