A phenomenological study of CTCL patients undergoing a RISCT
Research type
Research Study
Full title
The experience of patients with Cutaneous T Cell Lymphoma who have undergone a reduced intensity allogeneic stem cell transplant: a descriptive phenomenological study.
IRAS ID
218827
Contact name
Lesley Dibley
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
0 years, 10 months, 30 days
Research summary
The aim of the study is to gain a deeper understanding of the experience of patients with cutaneous T cell lymphoma (CTCL) who have undergone a stem cell transplant (SCT) within the last four years. CTCL is a rare type of non-Hodgkin lymphoma which primarily affects the skin and tends to become refractory to most treatment modalities. Controlling the symptoms of dry, red and itchy skin can be challenging. Patients with advanced disease with good performance status are considered for a stem cell transplant as this can offer a long-lasting remission to a subset of patients. There is very little qualitative research on this group of patients, and none that looks specifically at the experience of CTCL patients who have undergone SCT. This study will invite between 4-6 patients who attend a tertiary referral centre in the UK specialising in this disease to attend an interview with the researcher to discuss their experience. Interviews will take place either at the hospital or the patient's home. A patient approved interview schedule will form the basis of the interview, but the researcher will have the flexibility to reword and reorder questions as appropriate. Data will be analysed by the researcher and significant statements will be identified which will formulate clusters of themes. The study may determine the information needs of patients undergoing SCT, both before and after the procedure. The outcome of the study will improve patient care by increasing knowledge to inform clinical practice.
REC name
London - London Bridge Research Ethics Committee
REC reference
17/LO/0482
Date of REC Opinion
18 Apr 2017
REC opinion
Further Information Favourable Opinion