A Phase 3 study to determine the Efficacy and Safety of Losmapimod in Treating Patients with FSHD

  • Research type

    Research Study

  • Full title

    A Phase 3 Global, Randomized, Double-Blind, Placebo-Controlled, 48-Week, Parallel-Group Study of the Efficacy and Safety of Losmapimod in Treating Patients with Facioscapulohumeral Muscular Dystrophy

  • IRAS ID

    1005829

  • Contact name

    Amin Boateng

  • Contact email

    ukstart-upteam.sm@ppd.com

  • Sponsor organisation

    Fulcrum Therapeutics

  • Eudract number

    2022-000389-16

  • Clinicaltrials.gov Identifier

    NCT05397470

  • Research summary

    Facioscapulohumeral Muscular Dystrophy (FSHD), a genetic disease that affects muscle function. FSHD involves progressive muscle weakness that affects the face, shoulders, arms, trunk and also weakness of lower limbs and hips. FSHD causes significant physical disability. The sponsor of this study, Fulcrum Therapeutics, is developing an investigational compound called losmapimod to target the root cause of FSHD.
    This study will assess how losmapimod helps to stabilise and/or improve muscle function, how participants feel while taking losmapimod, and its safety and tolerability.
    The purpose of the 48-week placebo-controlled period in this study is to evaluate whether losmapimod may slow down the progression of the disease in individuals with FSHD1 and FSHD2. Placebo controlled means that a substance that is not active (placebo) that looks like the study drug will be used. This is done so that the study findings can be looked at fairly.
    About 230 adults of the age between 18 and 65 years will take part in this study. This will include about 210 adults with FSHD1 and 20 adults with FSHD2. This study will be conducted at approximately 35 sites in North America and Europe.

  • REC name

    East Midlands - Derby Research Ethics Committee

  • REC reference

    22/EM/0147

  • Date of REC Opinion

    25 Aug 2022

  • REC opinion

    Further Information Favourable Opinion