A mixed methods investigation of illness perceptions in endometriosis
Research type
Research Study
Full title
A mixed methods investigation of illness perceptions in endometriosis
IRAS ID
291876
Contact name
Chloe Moore
Contact email
Sponsor organisation
University of Strathclyde
Duration of Study in the UK
3 years, 0 months, 1 days
Research summary
Endometriosis is a chronic, incurable gynaecological condition affecting one in ten women and individuals assigned female at birth. Symptoms include chronic pelvic pain, fatigue, and heavy menstrual bleeding. Low life satisfaction and high rates of depression and anxiety are frequently reported within the endometriosis community, and these detriments in wellbeing affect the quality of life (QoL) of those living with the condition. Pain appears to be the primary driver of lowered QoL; however current surgical options are often ineffective against endometriosis-related pain, with at least 50% experiencing a recurrence of endometriosis following surgery. Whilst a cure or effective ways to manage endometriosis-related pain are sought, it is imperative that the mental health of those living with the condition is prioritised. Reportedly, only 10% of individuals living with endometriosis feel they have enough support to cope with their condition. However, there is a lack of psychological support for endometriosis, and particularly lacking is support which considers the unique and multifaceted experience of living with the condition. To create endometriosis-specific interventions, research examining the factors which contribute to reduced QoL is pivotal. Therefore, using a two-phase survey, this research aims to investigate which factors impact the wellbeing and QoL of those living with endometriosis. The online survey will ask participants for a range of information about their endometriosis diagnosis, as well as factors such as coping style, wellbeing and perceptions of their condition. 12-months after completion of the first survey, an identical survey will be sent to participants to measure any changes over time. Participants will also be asked if they would be interested in attending an interview to share their endometriosis-related experiences. It is hoped that this research will contribute to the creation of resources and targeted interventions designed to support the mental health of individuals living with endometriosis.
REC name
London - Central Research Ethics Committee
REC reference
21/PR/1730
Date of REC Opinion
1 Mar 2022
REC opinion
Further Information Favourable Opinion